Living With a Rare Condition ๐Ÿ’”๐Ÿงฌ๐ŸŒ

Andriadi Putra, 34, from Medan, North Sumatra, lives with a massive facial growth caused by neurofibromatosis, a rare genetic disorder that affects nerve tissue.

What began as a small mark on his face at birth slowly grew larger and heavier over the years, gradually changing his appearance and daily life. ๐Ÿ˜” As the condition progressed, the growth became more pronounced, bringing not only physical challenges but emotional and social ones as well.

Neurofibromatosis can cause tumors to develop along nerves in the skin, brain, and other parts of the body. In severe cases, like Andriadiโ€™s, the impact can be life-altering.

Yet through it all, his story reflects resilience in the face of extraordinary hardship. ๐Ÿ’ช๐Ÿค Living with a visible and complex condition requires strength that few truly understand.